Gurch Randhawa & Silke Schicktanz (Eds.)

Public Engagement in Organ Donation and Transplantation
(from the ELPAT Public Issues Working Group)

2013, 176 pages,
ISBN 978-3-89967-821-5,
price: 20,- Euro

Public campaigns in different European countries highlight an increasing awareness that public acceptance of organ donation is a crucial factor for the medical field of organ transplantation. However, addressing this complex matter requires a fresh perspective as to how governments truly engage with their public on issues which touch upon health care, morbidity, and mortality.
In this volume, eighteen contributions provide a timely review of how, in different countries and contexts, engagement and understanding of the public regarding organ donation can and should be investigated. The book provides detailed recent analysis of cultural impacts and religious attitudes of communities, patients, and even professionals. Furthermore, various forms of public engagement, including dialogues, campaigns, and media are discussed from methodological as well as theoretical perspectives. This volume offers new insights in how we gain a better understanding of public hopes and fears, interests and concerns about particular developments within organ donation and transplantation.
All contributors are members of the European Platform ELPAT (Ethical, Legal and Psychosocial Aspects of organ Transplantation).
Gurch Randhawa is Professor of Diversity in Public Health at the University of Bedfordshire, United Kingdom.
Silke Schicktanz is Professor of Cultural and Ethical Studies of Biomedicine at the University Medical Center Göttingen, Germany.


Contents:

Introduction
Gurch Randhawa & Silke Schicktanz


Constructing and studying the Public

Constructing “the public” attitudes toward financial incentives for organ donation: methodological and ethical implications
Silke Schicktanz & Klaus Hoeyer

Why the altruism/self-interest dichotomy does not hold and should be avoided also in public perception studies related to ‘donation’
Kristin Zeiler

To share or not to share your donor status on Facebook: public benefits, private risks
Mihaela Frunza, Eniko Demeny, Judit Sandor & Beatrice Ioan


Donation practice as a public policy issue

Enhancing public engagement in organ donation through the law: A comparison between Belgium and the United States of America
Anne-Cécile Squifflet

Professional and personal attitudes towards organ and tissue donation and registration in the Donor Register – Lessons from the Netherlands
Nichon E. Jansen, Jeantine Reiger & Bernadette J. J. M. Haase-Kromwijk

Evaluation of donation practices in Greece
Georgios Tsoulfas & Vasilios Papanikolaou

Consensus – a threat to active public engagement in organ donation
Anne Hambro Alnćs


Public and social acceptance

The social acceptability of implementing morally challenging strategies to increase donor rates
David Rodríguez-Arias

Taking a deceased organ donation decisions at the crossroad of affective and public health issues
Francesca Bosisio, Marie Santiago-Delefosse & Lazare Benaroyo

The role of faith/belief leaders in public engagement and organ donation
Kulwinder Kaur-Bola & Gurch Randhawa

A lesson about organ donation in primary school: a teachers’ perspective
Marion J. Siebelink, Petrie F. Roodbol, Marcel J. I. J. Albers & Harry B. M. van de Wiel

Knowledge and attitudes towards organ donation among immigrant Kenyans: a perspective from the UK
Esther Kamau & Gurch Randhawa

Donor programmes and public support for organ donation in Slovenia: reflections of Slovenija Transplant
Danica Avsec & Jana Šimenc

Public engagement in organ donation and transplantation in Bulgaria: a comprehensive analysis
Assya Pascalev, Yordanka Krastev & Adelina Ilieva


Cultural and social issues of interventions and concrete decision-making

Let’s talk about living donor kidney transplantation: Breaking the passive deadlock on living donation
Sohal Y. Ismail, Annemarie E. Luchtenburg, Willij C. Zuidema, Willem Weimar, Jan J. van Busschbach & Emma K. Massey

The morality of giving and receiving living kidneys: Empirical findings on opinions of affected patients
Sabine Wöhlke

Examining the relationship between deceased organ donation and religion: A case study of the Polish community in Luton and Dunstable
Chloe Sharp & Gurch Randhawa

Elements of the European jigsaw: the timing of the approach to bereaved families for consent to DBD or DCD donation and the implications for effective donation campaigns
Nichon E. Jansen, Bernadette J. J. M. Haase-Kromwijk, Magi Sque & Maryon McDonald

Pabst Science Publishers
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